These dying patients cannot get experimental drugs


By AGENCY

Autumn Fuernisen was diagnosed four years ago with a terminal brain disorder, juvenile-onset Huntington's disease. Patients with rare diseases often have difficulty qualifying for compassionate use programs for experimental therapies.- Londen Tabor/TNS

AT 15, Autumn Fuernisen is dying.

She was diagnosed at age 11 with a rare degenerative brain disorder that has no known cure or way to slow it down: juvenile-onset Huntington’s disease.

Get 30% off with our ads free Premium Plan!

Monthly Plan

RM13.90/month
RM9.73 only

Billed as RM9.73 for the 1st month then RM13.90 thereafters.

Annual Plan

RM12.33/month
RM8.63/month

Billed as RM103.60 for the 1st year then RM148 thereafters.

1 month

Free Trial

For new subscribers only


Cancel anytime. No ads. Auto-renewal. Unlimited access to the web and app. Personalised features. Members rewards.
Follow us on our official WhatsApp channel for breaking news alerts and key updates!
   

Next In Health

Tis the season to be giving: Gift ideas for healthier living
Quaternary care is the focus of UMSC's first clinical symposium
Blue Zone bluff: Could all those centenarians not be as old as we thought?
Mindfulness tips for a stress-free holiday this year end
Listen to happy tunes to turn negative memories into positive ones
Inaccurate results of self-test kits a worrying problem
No excuses: anyone can learn to dance and stay fit
Why it's important to keep track of your resting heart rate
Self-care strategies to manage anxiety
Stop eating junk food as it feeds cancerous colon tumours

Others Also Read