Malaysian woman with brittle bones disease runs multiple businesses

Having a disabled person on the runway highlights the importance of diversity and inclusivity. Photo: Instagram/Theanyssa_mua

Norhanisah Abdullah, 40, was born with a rare genetic disorder called osteogenesis imperfecta, also known as brittle bone disease. This means she faces the constant challenge of doing any activity with the fear of fractures.

Despite her disability, the woman isn’t letting it stop her from pursuing her dreams. She works as a makeup artist in Kuala Lumpur, and runs a home business selling biscuits, curry puffs and handmade jewellery.

“I was born with a disability, but I don’t see it as a burden. Although I experience chronic pain at times and rely on a wheelchair, I strive to live as normally as possible. I do what I can, even if it means working a bit slower than others,” says Norhanisah in an interview in Petaling Jaya, Selangor recently.

Norhanisah was one of the vendors at the Unveilling Uniqueness bazaar, an event in PJ held in support of people with special needs. The bazaar was part of a 12-hour event, which also featured a diverse range of activities including workshops, a drum circle session, and a concert where 36 musicians with disabilities took to the stage to showcase their talents.

‘It isn’t easy to live with a disability but what’s important is to never give up,’ says Norhanisah. Photo: The Star/Yap Chee Hong

At the event, Norhanisah sold jars of her homemade chocolate chip cookies and popcorn, as well as handmade semi-precious stone bracelets and costume jewellery. Despite her disability, the petite woman kept busy stringing beaded bracelets while tending to her customers.

“Years ago, I attended a bakery course where I learned to bake cakes and cookies. So far, my cookies are sold on Instagram, and through word of mouth,” says the mother of one, who was born in Lumut, Perak.

Never give up

Norhanisah is a good example of someone who proves that with determination, support and adaptability, people with disabilities can overcome challenges. She wants to spread the message that disability does not limit dreams.

“I will try different ways to earn an income. I may not be able to do things like able-bodied people but slowly, I can do many things,” says Norhanisah, who hopes to attain financial independence one day.

“I don’t earn much. My monthly income is less than RM1,000, from running different businesses. As long as I have enough money to buy calcium supplements and multivitamins, I’m happy. My husband, who was paralysed after an accident and is also in a wheelchair, sells burgers in Cheras. We currently make just enough to make ends meet.”

Norhanisah is constantly seeking new opportunities to boost her earnings. Photo: Instagram/Makeupbynysaabdullah

Norhanisah is constantly seeking new opportunities and innovative methods to boost her earnings and expand her ventures. Just before the pandemic, she invested RM500 in a makeup course to learn a new skill.

“Being a makeup artist is especially lucrative after the pandemic. People are attending more events and weddings, and increasingly seeking professional makeup services. Nowadays, more individuals turn to makeup artists because they value the expertise and artistry.

“Most of my clients prefer the natural look, which is trending online. People like this style because it enhances their features without being overly dramatic,” says Norhanisah, who shares photos of her bridal makeup work on her Instagram page.

She adds that she offers makeup services for bridal events, fashion shows and other functions.

“I’ve always been passionate about crafts and makeup. I continually refine my skills by watching YouTube tutorials and videos on social media platforms like TikTok and Instagram,” says Norhanisah, who was a model at a 2023 charity fashion show.

The backbone of strength

Norhanisah, the fifth of eight siblings, feels truly blessed for having very supportive parents and family members.

“My late brother also had brittle bone disorder, so my parents have always been very patient with both of us. They made sure that we never felt left out or different, treating us with the same love and care as our other siblings.

“Their support and encouragement have been instrumental in helping me navigate the challenges of living with brittle bones,” Norhanisah shares.

Nurqaseh (top) is the apple of Norhanisah’s eye. Photo: Norhanisah AbdullahShe is equally thankful to her only child Nurqaseh Adrianna Mohd Sani, 16, who not only assists with daily chores but also provides invaluable support to the family.

“I have trained her from a young age to be independent and strong. I am happy that she’s grown up to be a confident and kind girl.

“Due to my condition, I get tired easily and experience back pain. Thankfully, Nurqaseh is always willing to help with chores. She helps me with my business as a makeup artist too. I am incredibly proud,” says Norhanisah, who attends weekly physiotherapy sessions at Hospital Universiti Kebangsaan Malaysia in Cheras.

Norhanisah thinks it is important for people with disabilities to embrace their unique journey with resilience and creativity.

“Your disability does not limit your potential. Seek support, adapt and keep pushing forward. It isn’t easy to live with a disability but what’s important is to never give up. Embrace your abilities, celebrate your progress, and let your story inspire others,” she concludes.